Past Projects & Collaborations

I’ve had the privilege of partnering with patient-centered brands, nonprofits, universities, and healthcare leaders to create, consult, and contribute across a variety of platforms. Below is a sample of past work that reflects the heart of what I do: bringing voice, vision, and lived experience to healthcare.

WRITING & CONTENT CONTRIBUTIONS

Guest Blog | “When Every Day is Rare Disease Day" with MGFA on myasthenia.org
Print Feature in Medical Journal | Assessing the Impacts of a Tethered Educational Approach in Closing the Gaps in Clinician-Patient published in Neurology, the official journal of the American Academy of Neurology.
Social Campaign Contributor | Content for and sponsored by argenx SE

SPEAKING & EVENT HIGHLIGHTS

Patient Foundation Representative | TREAT-NMD Advisory Committee for Therapeutics (TACT) for Amplo Biotechnology
Featured Speaker | "Lab to Life: MG" session at the Muscular Dystrophy Association's 2022 Clinical & Scientific Conference
Instagram Live Event Host | "MG MinGle" series with MGFA and Johnson & Johnson Innovative Medicine
Panelist | Rare Disease Day Patient Panel for Health Union (formerly WEGOHealth)

VIDEO & MEDIA APPEARANCES

Video Testimonial | MG Insider Advice with WebMD
Satellite Media Tour | National awareness campaign for myasthenia gravis with Janssen Pharmaceuticals
Podcast Guest | MG Advocacy & Awareness on Rare Care, a Rare Disease Advisor Podcast
Self-Advocacy Course Instructor | Be Your Own Best Advocate Series with Patients Rising

BRAND & COMMUITY COLLABORATIONS

Online Community Health Leader | myasthenia-gravis.com
Physician Interviewer | "Investigating immune mechanisms underlying checkpoint inhibitor myasthenia gravis," an educational interview in collaboration with Myasthenia Gravis Rare Disease Network (MGNet)
Referral Partner | MG research studies shared via networks in collaboration with Rare Patient Voice

Organizations I’ve Worked With

The logos below represent some of the many organizations I have had the privilege of collaborating with throughout my entire career — as a consultant, a strategic partner, and in previous roles within the nonprofit and health sectors.

Past Projects & Collaborations

Organizations I’ve Worked With​

Organizations I’ve Worked With